Courtesy ARSTechnica.com:
by
Ken FisherTechnology is making transparency easier than ever and with the advent of electronic medical records, you might think doctors and other caregivers would embrace transparency for patients. After all, in the US and most modern counties, you have the right to review your own health records.
Yet a recent survey by Harris Interactive reported first at Computerworld reveals that doctors aren't big fans of full transparency. A survey of 3,700 doctors in eight countries revealed that only 31 percent believe that patients should have full access to their own medical records via electronic means. That's less than one in 3. The majority of those surveyed, some 65 percent, supported "limited access," while the remaining 4 percent believe there should be no access granted to patients. So, despite the fact that we have rights to review and amend our records, doctors don’t want it to be easy for us to do so via electronic means.
I find these numbers incredibly disappointing, although not surprising. While there might be many motivations for wanting to deny patients full access to their medical records, I know firsthand one such motivation: these documents can be terribly inaccurate. Mistakes can run from the serious to the banal. Ars’ own Casey Johnston told me her medical records reported the wrong birthdate for her. Not a huge deal, but also, sort of a silly mistake to make.
I experienced something a little more serious. A few years ago I decided it was time to get some life insurance for both my wife and myself. Because we were seeking a significant policy, we were put through a fairly intense wringer, including a battery of medical tests conducted in our home and an extensive review of our medical records, in addition to multiple interviews. Through this process, I came to realize that my own medical records were littered with inaccuracies. For instance, the length of time that I had one specific condition had been significantly misstated. Another medical matter was listed that simply did not apply to me. Combined, these 2 issues could have cost me thousands of dollars over the course of the term of this insurance, had I not successfully resolved them. And this says nothing about how potential errors in records could lead to ineffective or even fatal treatment in an emergency situation.
What shocks me about all of this is the lack of concern online. The Internet took great umbrage at the likes of Twitter and Facebook before those companies liberated their users’ data. Why is it that we care more about getting access to our history of tweets than we do about getting electronic access to data about our personal health? In Massachusetts, doctors are given 3 weeks to respond to a request for a copy of your records, and hospitals are given a full month. But in the world of electronic records, such access could be instantaneous.
Perhaps what is most irksome to me is that despite the lack of support for full access, 82 percent of those doctors surveyed do want patients to update their own records with regards to “demographics (95 percent), family medical history (88 percent), medications (87 percent) and allergies (85 percent),” according to the report. “And, the majority of doctors (81 percent) believe patients should even be able to add such clinical updates to their records as new symptoms or self-measured metrics, including blood pressure and glucose levels.” In other words, “please do make our job easier to care for you, just don’t ask to see everything we are writing about you.”
In the end, the age of the godly doctor and the supplicant patient is coming to an end. It will likely take decades, but I wouldn't be surprised in my lifetime to see some iterative version of IBM's Watson occupying a corner of everyone's home, diagnosing and potentially treating a huge range of maladies. Artificial intelligence, nanotechnology, and the Internet (to just mention 3 major vectors) will converge to transform medical care and alter the meaning of what it is to be a doctor. Full and complete access to one's own medical history is a prerequisite to this progress, and doctors who stand opposed to it are ultimately standing in the way of progress.
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